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Questions and answers
One of the things I often deal with related to my disability is how to answer questions asked of me by those who don’t know what it’s like to have cerebral palsy, or even what it is. There’s a lot of discourse happening around disability now, and the labels that are put on people who live with disabilities. According to attorney Kenneth A. Stern, a lawyer who claims to specialize in cases related to cerebral palsy, often abbreviated as CP, it is estimated that there are 764,000 children and adults living with Cerebral Palsy in the United States. Another set of attorneys, Miller and Stois, provide studies stating that in…
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Sick days (but few days off)
It can be extremely difficult at times to deal with brain fog and other issues. I’ve been sick over the last couple of weeks. [I suspect I may have caught something from a young lady at Winter Jam 2023 who was hanging all over me convinced that she knew me from a summer camp.] So, for a little less than a week now, I’ve been dealing with cough, runny nose, sore throat and other flu/allergy like symptoms. Part of my Cerebral Palsy includes having a low tolerance for pain and lots of brain fog. Most of this week has involved sleeping in, and lots of essential oils in the diffuser…
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Traveling and balancing workload with self-care
One of the things that’s become a struggle for me lately, especially as I get older, is learning how to balance things out. This past week, I’ve been in one of my favorite places, but it hasn’t been without its challenges. Travel is the inspiration for this week’s blog, and it’s likely something I’ll touch on in more detail later. On the 11th of February, I was blessed to celebrate God’s gift of 33 years of life. To celebrate, I traveled with my parents to spend a few days in one of our favorite places: Charleston, South Carolina. As much as I love it, I think I still have a…
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Perils of Disability: Fixed incomes and attending concerts
Isn’t it interesting how sometimes, an idea for a new blog post just drops into your lap? At the time that I began working on this week’s blog, I was in the process of preparing to attend a concert in a nearby city with some friends. To someone who is able-bodied, this seems like nothing. It’s easy to forget that what may be simple for you can actually be difficult for someone who struggles with their level of physical ability. Anyone who knows me personally will tell you that the only thing I enjoy more than writing is music. I’ve been singing since I was a young child. My mother…
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Nostalgia: Who I used to be vs. Who I am
What makes you feel nostalgic? So, today’s writing prompt actually proves useful. As someone who struggles with disability, I long for days when I could go back to where I used to be vs. where I am now with my diagnosis of Cerebral Palsy. By all accounts, I should be able to walk– I actually did walk with the assistance of a walker when I was younger. When I see someone running to get somewhere, I immediately wish I could still walk or run. Even in my walker, at least I had that freedom. It’s not common for a person with Cerebral Palsy as mild as mine to lose their…

